Thursday, October 31, 2013

From the NIH: Biospecimen policy: Family matters


 2013 Aug 8;500(7461):141-2. doi: 10.1038/500141a.

Biospecimen policy: Family matters.

Source

National Institutes of Health, Bethesda, Maryland, USA. kathy.hudson@nih.gov
PMID:
 
23925224
 
[PubMed - indexed for MEDLINE]

"In March, two of the most deeply held values in the medical-research community — public data-sharing and respect for research participants — collided when the genome of the ubiquitous cell line HeLa was published1 and posted in a public database. Controversy ensued. The full sequence data could potentially uncover unwanted information about people whose identity is widely known: the family of the woman from whom this immortal line was derived 62 years ago, Henrietta Lacks."

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