Friday, February 19, 2016

Fundamental Considerations for Biobank Legacy Planning

 2016 Feb 18. [Epub ahead of print]

Fundamental Considerations for Biobank Legacy Planning.

Author information

  • 11 Department of Pathology and Laboratory Medicine, Office of Biobank Education and Research (OBER), University of British Columbia , Vancouver, British Columbia, Canada .
  • 22 Biorepositories and Biospecimen Research Branch, National Cancer Institute , Bethesda, Maryland.
  • 33 Tumour Tissue Repository (TTR), BC Cancer Agency, Vancouver Island Centre, Victoria , British Columbia, Canada .

Abstract

Biobanking in its various forms is an activity involving the collection of biospecimens and associated data and their storage for differing lengths of time before use. In some cases, biospecimens are immediately used, but in others, they are stored typically for the term of a specified project or in perpetuity until the materials are used up or declared to be of little scientific value. Legacy planning involves preparing for the phase that follows either biobank closure or a significant change at an operational level. In the case of a classical finite collection, this may be brought about by the completion of the initial scientific goals of a project, a loss of funding, or loss of or change in leadership. Ultimately, this may require making a decision about when and where to transfer materials or whether to destroy them. Because biobanking in its entirety is a complex endeavour, legacy planning touches on biobank operations as well as ethical, legal, financial, and governance parameters. Given the expense and time that goes into setting up and maintaining biobanks, coupled with the ethical imperative to appropriately utilize precious resources donated to research, legacy planning is an activity that every biobanking entity should think about. This article describes some of the fundamental considerations for preparing and executing a legacy plan, and we envisage that this article will facilitate dialogue to help inform best practices and policy development in the future.

1 comment:

  1. Benefits of biobank software?
    Warehouse Management
    Biobank software combines powerful specimen logistic and tracking capabilities with specimen workflow and processing management features.

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