From U Penn: Childrens' decision-making involvement in chronic diseases

http://www.ncbi.nlm.nih.gov/pubmed/22138318

J Pediatr Psychol. 2011 Dec 2. [Epub ahead of print]
Measuring Children's Decision-Making Involvement Regarding Chronic Illness Management.
Miller VA, Harris D.
Source
Department of Anesthesiology and Critical Care Medicine, The Children's Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania and Center for the Integration of Genetic Healthcare Technologies, Perelman School of Medicine at the University of Pennsylvania.

Abstract
OBJECTIVES:
To develop a measure of decision-making involvement in children and adolescents with cystic fibrosis, diabetes, and asthma.

METHODS:
Parent-child dyads completed the Decision-Making Involvement Scale (DMIS) and measures of locus of control and family communication. DMIS items were subjected to exploratory and confirmatory factor analysis (CFA). Temporal stability and construct validity were assessed.

RESULTS:
The parent form was reduced to 20 items representing five factors. CFA showed that the five factors were an acceptable fit to the parent- and child-report data. Internal consistency values ranged from 0.71 to 0.91. Temporal stability was supported by moderate-substantial intraclass correlation coefficients. DMIS subscales were associated with child age, child locus of control, and family communication.

CONCLUSIONS:
The DMIS can be used to inform our understanding of the transition to greater independence for illness management. Additional research is needed to examine outcomes of decision-making involvement, including treatment adherence and responsibility.