Second that. From U Alberta: Harm, hype and evidence: ELSI research and policy guidance

http://www.ncbi.nlm.nih.gov/pubmed/23534337

Genome Med. 2013 Mar 26;5(3):21. [Epub ahead of print]

Harm, hype and evidence: ELSI research and policy guidance.

Caulfield T, Chandrasekharan S, Joly Y, Cook-Deegan R.

Source

Health Law and Science Policy Group, University of Alberta, Edmonton, Alberta Canada, T6G 2H5. tcaulfld@law.ualberta.ca.

Abstract

There has been much investment in research on the ethical, legal and social issues (ELSI) associated with genetic and genomic research. This research should inform the development of the relevant policy. So far, much of the relevant policy - such as in the areas of patents, genetic testing and genetic discrimination - seems to be informed more by speculation of harm and anecdote than by available evidence. Although a quest for evidence cannot always be allowed to delay policy choice, it seems axiomatic to us that policy options are improved by the incorporation of evidence.