Genomic data-sharing

Front Genet. 2014 Mar 5;5:34. doi: 10.3389/fgene.2014.00034. eCollection 2014.

Genomic data-sharing: what will be our legacy?

Callier S1, Husain R2, Simpson R2.

Author information

• 1Department of Clinical Research and Leadership, School of Medicine and Health Sciences, The George Washington University Washington, DC, USA.
• 2School of Public Health and Health Services, The George Washington University Washington, DC, USA.

Abstract

Prior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Ongoing challenges to informed consent, privacy and data-sharing will influence the stories that research participants today share with future generations. This has significant implications for the advancement of genomic science, and the public's perception of genomic research.