Patient Educ Couns. 2014 May 9. pii: S0738-3991(14)00181-5. doi: 10.1016/j.pec.2014.05.002. [Epub ahead of print]

The experience of people with lung cancer with a volunteer-based lay navigation intervention at an outpatient cancer center.

Lorhan S1, Dennis D2, van der Westhuizen M2, Hodgson S2, Berrang T2, Daudt H2.

Author information

• 1BC Cancer Agency, Victoria, Canada. Electronic address: slorhan@bccancer.bc.ca.
• 2BC Cancer Agency, Victoria, Canada.

Abstract

OBJECTIVE:

To describe the experiences of patients with lung cancer with a volunteer-based lay navigation intervention.

METHODS:

Forty patients with newly diagnosed lung cancer enrolled in a three-step navigation intervention delivered by trained volunteer laynavigators (VLNs), beginning prior to their first oncologist's appointment and ending before the start of treatment. Methodological triangulation of data was used in a mixed method study design. Cases were categorized based on the predominant needs met by the VLN: emotional, practical/informational, family, and complex. Data were analyzed using framework analysis.

RESULTS:

The provision of emotional support, information, and referrals to other services by the VLN were of particular benefit to the patient and their families. Satisfaction with the program and its timing was high; it was considered an effective means for patients to share concerns and have their needs attended to before starting treatment.

CONCLUSION:

This study demonstrates capacity for lay volunteers to address the multifaceted needs of lung cancer patients during their transition from primary care in the diagnosis to treatment phase.

PRACTICE IMPLICATIONS:

Using volunteers as navigators offers an opportunity to meet patient needs with minimal resources, increase access to services for patients, and improve the sustainability of the program.